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You are here: Home / Awards and Prizes / EURORDIS Photo Black Pearl Awards – Photo Contest

EURORDIS Photo Black Pearl Awards – Photo Contest

Deadline: 31 January 2024

Apply for the EURORDIS Photo Award, an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond.

Submit your photo for the EURORDIS Photo Award. World-renowned National Geographic photojournalist Marcus Bleasdale will then draw up a shortlist of five photos to be put to a public vote.

Award Categories

  • Lifetime Achievement Award
    • For an individual who has manifested a lifelong dedication to addressing the needs of people living with a rare disease. Their commitment has had a positive impact on the rare disease community at large, wielding influence on a European or international scale.
  • Young Patient Advocate Award
    • For a young, outstanding individual (aged 30 or under) who actively contributes to raising awareness of key issues for people living with a rare disease at a local, national, or international level.
  • European Rare Disease Leadership Award
    • For an individual who has shown remarkable leadership in the field of rare diseases at a European level.
  • Policy Maker Award
    • For a policy maker whose dedication and commitment has made a significant difference to the rare disease community.
  • Scientific Award
    • For a distinguished researcher whose career represents a rare combination of scientific excellence and support for the patient community.
  • Volunteer Award
    • EURORDIS Volunteer Awards will be presented to individuals who have made an outstanding contribution to EURORDIS and the rare disease community on a voluntary basis.
  • Members Award
    • For a EURORDIS member patient organisation demonstrating innovative methods in patient support or advocacy.
  • Media Award
    • For an individual or group creating a media piece to raise awareness of rare diseases and bring the needs of people living with a rare disease to a wider audience. The award promotes excellence in journalism, photography, cinema, series, art, literature, and mass media.
  • Social Media Award
    • The Award is presented to an individual or organisation who have created innovative and meaningful social media content, advocating for people with rare diseases and bringing the reality of their daily lives into the public arena.
  • Holistic Care Award
    • This award is presented to a team of professionals or organisations that provide or support the provision of coordinated and holistic care, support and guidance to people living with a rare disease and their family members involving people as partners.
  • Company Award for Innovation
    • For a pioneering company using innovative methods to develop treatments for rare diseases.
  • Company Award for Patient Engagement
    • For a company that demonstrates long-term commitment in its collaboration with rare disease patients, consulting with them in the early stages of development and clinical trial design.
  • Company Award for Health Technology
    • For any company working in the field of technology developing medical devices, IT platforms, health apps, or diagnostic tools aiming to improve the lives of people living with a rare disease.

Prize Information

  • The winner of the EURORDIS Photo Award 2024 will be announced live at the EURORDIS Black Pearl Awards Ceremony; the three finalists with the most votes will receive, respectively, the first, second, and third prizes below.
    • 1st: GoPro HERO10 Black (or equivalent) + Winner’s certificate
    • 2nd: Fitbit Versa 3 (or equivalent) + Winner’s certificate
    • 3rd: Bose Bluetooth SoundLink Color II sPEAKER (or equivalent) + Winner’s certificate
    • Runners-up: Winner’s certificate

Eligibility Criteria

  • The contest is open to all nationalities, ages and diseases.
  • Every year hundreds of people from all around the world submit their photos, each reflecting the drive of people living with a rare disease worldwide.

For more information, visit EURORDIS.

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